ARTICLES
Using A Collaborative Approach to Educating Students
with Severe Anaphylaxis
by Diana Bolan, Acting Principal and Marilyn
Howden, Teacher, Minchau Elementary School, Edmonton School District
No.7
Promising Practices in Special Education
Life-threatening Allergies (anaphylaxis) June 1996, Vol.2:5, Alberta
Education Special Education Branch
For parents of young children with severe allergies,
a sense of control over the environment is essential to reducing
the ever-present concern about severe, life-threatening allergic
reactions (anaphylaxis). While at home, the parents construct a
safety zone around the child, however, when the child enters school,
parents relinquish much of this control.
Schools that work with parents to build an environment
of mutual trust, help to create a new, larger safety zone which
encompasses students, parents, teachers, staff and administrators.
Minchau Elementary School in Edmonton is working
hard to create mutual trust through a collaborative approach to
the education of one student. When a student with severe, life-threatening
allergies to peanuts and soy products enrolled in the Grade 1 program
last September, the administration, in collaboration with the parent
and teachers, immediately put a safety plan in place for this child.
St. John's ambulance was called to inservice and certify staff directly
involved with the student in first aid, CPR and administration of
the EpiPen (adrenalin kit). Other interested staff members were
invited to attend. This certification was seen as a benefit to the
school as a whole and it is now a requirement in the Alberta Health
and Safety Act Regulations that a certain number of staff members
in each school receive first aid/CPR training.
Convinced that it would be impractical at that
time to try to enforce a "no peanut" rule throughout Minchau, procedures
were put into place to make the student's classroom a no-food area.
When children in Marilyn Howden's Grade 1 classroom enter school,
they place their lunches and snacks on a cart outside the classroom.
To minimize the exposure to even the smell of peanut or soy products,
the student prepares early for recess and leaves the building before
the other students collect their recess snacks from their snack
cart. While most students who stay for lunch eat in their classrooms,
there is no eating in this room and an alternative lunch area has
been assigned to the Grade 1 classes. The food cart is taken by
the lunch supervisors to the assigned lunch area for distribution
to the students. The student with severe allergies goes home each
day for lunch.
"The playground of our schoolyard is kept food
free, for the safety of the children," adds Marilyn. "If they are
playing on any of the equipment, they should not be eating. It is
a safe practice. That's our rule."
The student's mother, a nurse, has been instrumental
in training staff to use the EpiPen and administer CPR using a life-sized
model. At the beginning of the school year, she established a positive
rapport with the school staff and her constant reassurances, affirmations
and involvement have been a source of encouragement to staff members
who were naturally concerned about the health and safety of this
student. This mother lives by the conviction that if she makes herself
available to school staff, she will reduce everyone's anxieties,
including her own and her child's.
While Marilyn has not altered the Grade 1 curriculum,
she has made modifications by eliminating food manipulative as a
resource. "I think in terms of modifying events rather than removing
them from the Grade 1 experience," adds Marilyn. One experience
Marilyn did not want to lose was birthday celebrations in the classroom.
However rather than having parents donate treats, she decided to
incorporate cooking into the class curriculum. At the beginning
of the school year, each parent is asked to send $2 for the birthday
fund. This provides new experiences for the children, yet gives
Marilyn control over the food products. Birthdays are celebrated
on a monthly basis and treats are prepared at school as a group-centre
project.
The Grade 1 classroom is situated in close proximity
to the office and Marilyn wears a pager at all times. If triggered,
the pager sounds alarms in the office and at the local ambulance
station. The parent has provided the classroom with non-allergenic
soap and hand cream. When the student leaves the classroom, she
wears gloves to protect her from tactile contact with peanuts and
soy products in the school. In this and other ways, the school has
shared the responsibility for the safety of this student and the
staff find the procedures constructive and practical. The parent
also wears a pager so she can be contacted at any time to answer
questions or to be made aware of a reaction.
"We have a safe program because we have all
worked together to make it work. Everyone from the playground supervisors,
janitorial staff, office staff, library personnel and parents volunteering
in our school is part of our team and together we're building confidence
in the system we have in place," concludes Diana Bolan, acting principal
of Minchau School. The child's mother echoes these remarks. Her
personal safety zone now includes knowing that anaphylaxis is manageable
and that all safety and medical interventions are in place to allow
her child to have the rewarding experience of going to school and
meeting new friends.
Site-based Modifications:
Playground:
- no-food area
- supervisors carry pagers, EpiPen and telephone
- student carries EpiPen in waist pack
Classroom:
- teacher wears pager in classroom
- no carpet
- easy access to office and exits
- easy to keep clean
- no food brought in from outside
- student carries EpiPen in waist pack
- parent furnishes non-allergenic soap
- use "safe" products; e.g., paper and glue
- provide for desk and equipment washing
Building:
- student wears gloves to reduce likelihood
of tactile contact with peanut products or oils
- safety procedure in place in the event of
an emergency
- student is excused early for recess to avoid
exposure to peanut and soy products
The Awareness Series, which includes "A Teacher's
Guide to Allergies," is available from Alberta Education's Learning
Resources Distributing Centre
(780) 427-5775 at a cost of $5.15 + GST. The series includes 15
brochures.
For additional copies, contact the Special
Education branch. Copyright Alberta Education 1996. Permission is
given to reproduce this article for educational purposes and on
a non-profit basis.
For more information contact:
Calgary Allergy Network http://www.calgaryallergy.ca
Lilly Byrtus, Regional Coordinator
Allergy Asthma Information Association
16531 - 114 Street, Edmonton, AB T5X 3V6
Phone/Fax (780) 456-6651 email: prairies@aaia.ca
Diana Bolan, Principal, Minchau Elementary
School,
3615 Millwoods Rd E, Edmonton, AB T6L 5X2
Phone: (780) 461-0616 Fax: (780) 461-0837
Special Education Branch
10th floor, East Devonian Bldg., 11160 Jasper Ave.
Edmonton, AB T5K 0L2, Phone: (780) 422-6326 Fax: (780) 422-2039
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